What is Medical Assistance in Dying?

 

Medical assistance in dying (MAiD) is one of a number of choices that can be considered in end-of-life care.

It is a process where a medical practitioner helps a patient who wants to voluntarily and intentionally end their life.

This is provided in a regulated and safe environment, typically through an independent medical doctor, with strict oversight of the service. All patients will continue to have access to palliative care services.

Many countries have introduced MAiD in the past two decades. In these countries, MAiD represents a small minority of overall deaths.

Do the Irish public support Assisted Dying?

Multiple surveys and sources suggest the Irish public are in favour of the introduction of Assisted Dying in Ireland.

An Amarach Poll for the Claire Byrne RTE show on 14th Dec 2021 showed that 74% are in favour of Assisted Dying (14% against and 12% don’t know)

In October 2021 (here) a poll showed that 71% are in favour of legalisong assisted dying, while just 12 per cent said they would support a prosecution and the rest did not express an opinion. This came from a Behaviour & Attitudes poll for The Sunday Times in October 2021.

This Amárach/Claire Byrne Live poll for TheJournal.ie found that 55% of people think that assisted suicide should be legal in Ireland. The poll found that 22% opposed the legalisation of assisted suicide, while 23% said they didn’t know.

Furthermore, the vast majority of people in other juristictions also support MAiD. In the UK, 82% supports assisted dying. Support is consistently high regardless of age, gender or political persuasion.

Is there a difference between ‘Assisted Dying’ and ‘Medical Assistance in Dying’?

 

Assisted Dying and MAiD are synonyms.

Medical Assistance in Dying is one of a number of choices that can be considered in end-of-life care. It is a process where a medical practitioner helps a patient who wants to voluntarily and intentionally end their life.

Assisted Dying can be defined as a doctor or nurse practitioner giving a person medication to relieve their suffering by bringing on death; or, the taking of medication by a person to relieve their suffering by bringing on death. This is the definition which was taken in New Zealand.

Medical Assistance in Dying (MAiD) is the term which has been used in Canada since June 2016. The understanding of MAiD in Canada which is regulated and operated by the provinces, includes options of intravenous administration of medications by physicians or nurse practitioners (the most common method), or self-administration of oral medications.

Where in the world is Assisted Dying lawful?

 

Medical assistance in dying is currently available in multiple countries internationally, being legally available and regulated in parts of Australia, Belgium, Canada, Colombia, Luxembourg, The Netherlands, Switzerland, and several US States.

It is envisaged that MAiD will be introduced in several more States in the US and Australia in the coming years.

The first country to introduce Assisted Dying was Holland in 2001, followed by Belgium in 2002 and most recently a referendum in New Zealand showed overwhelming support for MAiD.

A strong campaign to introduce Assisted Dying is taking place in the UK now.

Before the Dying with Dignity Bill came through the Dáil in 2020, what was the status of Assisted Dying in Ireland?

 

In Ireland, under Section 2 of the Criminal Law (Suicide) Act 1993, anyone who ‘aids, abets, counsels or procures the suicide of another [person]’ can be convicted and imprisoned for up to 14 years.

The Dying with Dignity Bill brought the conversation on Assisted Dying to national attention in 2020.

Several high-profile cases have highlighted the lack of access to MAiD in Ireland.

In 2002, Rosemary Toole Gilhooley died. However, it subsequently transpired that an American Minister, Rev George Exxo admitted to assisting Rosemary in her death in Ireland. His extradition to Ireland was sought, but this was subsequently refused.

Marie Fleming attempted to establish her right to die, by MAiD in Ireland, in 2013. Diagnosed with multiple sclerosis for over 25 years, she gave evidence that she suffered from unbearable and severe pain. She told the Court she was no longer able to control her electric wheelchair, needed help to eat and drink, and had to be washed, dressed and repositioned in her wheelchair and was losing her ability to swallow. She lost her case and the appeal to the Supreme Court- but this acknowledged the ability of the Irish legislature to allow for Assisted Dying through legislation. She died in December 2013.

What happened the Dying with Dignity Bill and where does that leave the introduction of Assisted Dying to Ireland?

 

In 2020, the Dáil backed the progress of the legislation to committee state, by 81 to 71 votes.

This means that a revised legislative provision for Assisted Dying will be considered at an Oireachtas Committee.

Importantly a referendum is not required to introduce Assisted Dying in Ireland. The Irish government can introduce primary legisation to make Assisted Dying available.

This Oireachtas Committee will be formed in 2022 to consider the legislative introduction of MAiD in Ireland and has sought submissions from the public.

Our group has made a detailed submission (here) and will hopefully provide the Oireachtas Committee with an evidence-based outline of how Assisted Dying could operate in Ireland.

Is it true that a ‘slippery slope’ will happen if we introduce Assisted Dying?

 

The fear of a ‘slippery slop’ is often used to distract from a very modest conservative reasonable proposal to give patients with a terminal illness who have intolerable suffering a choice - to avoid suffering. 

Also, those who talk about a slippery slope are often completely opposed to Assisted Dying in all circumstances.

What is proposed in Ireland - like what was discussed in the Dying with Dignity Bill- is similar to Australia and New Zealand - in that it would be created and modified only through legislation. Laws cannot change by accident but only through further legislation. Grounds for accessing MAiD, in Ireland, will therefore be carefully outlined.

Grounds under disability, dementia or mental illness will not ‘slip’ into legislation- because our legislation will be specific. If expansion of eligibility is requested, this would require further debate and legislation.

Doctors seem divided on this issue- what should I think of this?

 

Our group represents a large number of doctors that support Assisted Dying and we recognise that this is a societal issue rather than a medical issue. We should empower individuals to have control over their own lives.

The decision to access Assisted Dying comes down to individual choice and the freedom of individuals to make decisions that pertain to their own life.

The days of institutions - church or medical bodies- telling individuals how they should or shouldn’t live, are not appropriate in a modern secular society. 

It is our understanding the only survey of doctors in Ireland- done by the Irish Medical Organisation in 2020- highlighted that an overwhelming majority of doctors in Ireland support Assisted Dying. This survey has yet to be pubished.

What about cases where patients lose capacity (e.g. dementia), should Assisted Dying be made available to them?

 

Dementia is a dreadful and devastating disease.

The issue with dementia is that when this condition becomes ‘terminal’, a patient may lack consent and may be unlikely to have capacity at the time that medical assistance in dying would take place. As a result consent at the time of death might not be possible. Therefore providing for Assisted Dying for individuals who lack capacity at the time of death can be challenging.

Many countries have procedures put in place (including Advanced Care Directives) which allow for individuals to access MAiD, even when they lose capacity at the time of death. Many of these same countries, legislated for MAiD only in cases of preserved-capacity at the time of death initially. Later, when the public saw that procedures were safe and robust, legislation was widened to consider more complex clinical situations, including Assisted Dying when capacity can be lost.

Whilst it is unfair- and perhaps in the future people with dementia should be considered- it is our opinion as a group, that initially, eligibility grounds for MAiD should a) include dementia as a qualifying condition; but b) recommend that capacity to consent is also present at the time of death.

Can we know if a person has capacity to end their own life?

 

Capacity already plays a key role in all decision-making and end-of-life decision-making.

People with capacity can refuse treatment, even if that is likely to result in their death.

As we stated above, we propose that initially only patients who have capacity at the time of medical assistance of dying should be eligible in the initial legislation. All patients must be free of coercion and this will be assessed by the regulated process and medical practitioners.

Doctors commonly utilise frameworks to assess capacity. If a doctor doubted a person’s capacity in a situation of MAiD, a clear process will be in place to allow for second opinions.

What about patients suffering from mental health conditions- should they be eligible for Assisted Dying?

 

In our submission to the Oireachtas Justice Committee our group recommended that only physical heath conditions should be included as the qualifying condition, which would meet eligibility under legislation.

Mental health conditions should be specificially excluded as a qualifying condition.

However, patients with a physical condition (e.g. terminal cancer) who have a co-existent mental health conditions (e.g. anxiety or affective symptoms) would of course be eligible under our proposals, as long as they possess capacity and understand the end-of-life options available to them.

Can palliative care work alongside assisted dying?

 

We support efforts to improve access to high quality palliative care. Where available, palliative care is holistic, patient-centred and aims to care for a dying person in their own home, when requested.

There are areas in the Republic of Ireland where specialist palliative care services are under-resourced, which can lead to unequal availability of care.

IDsMAiD supports well-resourced palliative care services, including Palliative Care-led and General Practice-led care, addressing regional inequalities accessing services.

It has been shown in other juristictions where Assisted Dying is enacted, that palliative care can work together with MAiD.